Troy’s Journey

Troy’s Journey

The Fidelian Foundation donated a special wheelchair designed for their three year old son Troy along with a $3,000 check for his care.

Our “Baby Boy Troy” was born prematurely on August 17, 2012 at 29 weeks and weighed only 2lbs., 6oz.

At just two weeks, Troy became very sick and developed a blood infection.  Because of this, he had to go back on the ventilator and had multiple blood and platelet transfusions.  But our little fighter pulled through as always and beat the odds.  At his one month head ultrasound, we found out our baby has Periventricular leukomalacia (PVL), a type of brain injury.

Along with developmental delays from PVL, Troy has also been challenged with Cerebral Palsy Spastic Quadriplegia, Infantile Spasms and Cortical Vision Impairment. He keeps busy with 12 therapies a week and counting!

Troy has severe gross motor delays and will require extensive therapy.  He also requires adaptive equipment such as a wheelchair and stander, etc. Troy’s conditions are chronic and will require lifetime specialized care and assistance.

Although we were heartbroken with the news, we have faith in our little fighter and know that he will get through this as he has everything else.

This is Troy’s Journey.  You will see his challenges, but mostly, be amazed by his accomplishments.  He is our miracle and we want to share him with you. We hope you all will learn as much as we do from our little fighter Troy on his journey.

If you would like to send a donation for Troy’s Journey and the Fidelians Charities please click the button below.

For more information on Troy’s Journey, please download here.

If you would like to purchase tickets to the event please click here.